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Meet the Loughry Family

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Ethan, age 3
Modoc County 

Ethan has serious cavities in his front teeth and needs treatment soon. In fact, the cavities are so bad that he needs oral surgery. Ethan is enrolled in Medi-Cal dental coverage, and the nearest oral surgeon that accepts Ethan’s Medi-Cal is 8 hours away. Getting him to the appointment presents many problems for his parents, Caroyln and Jake Loughry.

For regular check-ups, Carolyn takes her son to a dentist 20 miles away from their home in Alturas, California. “There are three dentists right here in town, but none of them take Medi-Cal,” she said.

Several months ago, Ethan’s dentist said that oral surgery was needed to treat his front teeth. The dental office referred Ethan to an oral surgeon in Stockton, an 8-hour drive away. “I asked them if there was someone else, but they said that no one closer takes Medi-Cal,” she said. There is an oral surgeon in Susanville, 90 minutes away, and Redding, about two hours away, but neither office accepts Medi-Cal.

Carolyn is a stay-at-home mom, caring for Ethan, who has spina bifida, and his 1-year-old sister, Elizabeth. Jake works on a ranch. Ethan is unable to walk due to the spina bifida, requiring Carolyn’s husband to help with the trip. “To get Ethan to the dentist means that my husband has to take three days off work. He’s been harvesting, and it’s hay season right now; he just can’t take that much time off work,” she explained. “Then there’s the gas and motel room. It’s a big burden to travel that far, and it’s a huge financial impact for us. He’s needed the treatment for two months now, but we just haven’t been able to afford the trip.”

Carolyn is thankful for the insurance coverage provided by Medi-Cal. “I just wish there were more dentists who accept Medi-Cal,” she said. “We’re saving money out of every paycheck to pay for the trip. We’re hoping next month my husband will be able to take the time off, and I think we’ll be able to afford the trip.” Currently, Ethan’s teeth are sensitive to cold, but he is not in pain. “I’m worried that his situation will get worse quickly,” Carolyn said. “We need to get him to the dentist soon.”

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Meet the Guttierez Family

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Dominic2Dominic Guttierez
Siskiyou County

Anjelig Gutierrez discovered that her son, Dominic, had fragile teeth when he was a toddler. “He chipped a tooth when he was about 2 years old,” she said. “He also gets cavities easily.”

Anjelig lives in Yreka, CA, an area with only one dentist who accepts Medi-Cal, and where it takes months to get an appointment. “The staff at Early Head Start kept telling me that he needed to get his teeth seen, but the appointment was a long time away,” she said. Eventually, they were able to get an appointment in Sacramento, where the wait was three months. “Thankfully, Head Start helped me with transportation, because it was three hours to get there. Dominic was in pain, and he cried the whole way.” While waiting months for an appointment, Dominic’s dental needs had worsened so much that he needed to have six silver crowns on his teeth.

Over the next three years, Dominic, now age 5, periodically complained about his teeth hurting. “Three times I made appointments, waited months to get in, then they didn’t find anything wrong,” Anjelig said.  During the third dental visit, an abscess was discovered above several front teeth. Dominic and Anjelig listened to the dentist describe the treatment, which involved pulling several teeth. “With my son sitting next to me, the dentist said that I was going to have to hold my son’s head hard and keep it still, while he got in there and yanked the teeth out,” she said. “I could tell from my son’s face that he was terrified.”  Anjelig was unwilling to participate in the treatment, and asked for a referral instead to a pediatric dentist. It took nearly four months, but the dental office eventually complied and gave Anjelig a grant to see a dentist more than 65 miles away.

The pediatric dentist she saw gave Dominic a different prognosis. He said that there was no abscess. The teeth that were supposed to be pulled were loose naturally. “They’re baby teeth that will fallout soon,” Anjelig said. Anjelig appreciates the positive outcome for her son’s oral health; however, she is worn-out by the difficulties with seeing a dentist.  “If he says that his teeth hurt, I should be able to get him an appointment without waiting for months and months. But there’s only one dentist, so we have to wait.”

 

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Meet the Vera Family

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Lizbeth, 5 years old
Sacramento County 

Lizbeth Vera’s first visit to the dentist did not go smoothly. The 5-year-old saw strange metal instruments lined up on the tray, and fear took over. “When the dentist tried to insert a tool in her mouth, she bit his finger,” said her mother, Erica. “The dentist said that he could not treat her cavities because Lizbeth was being uncooperative.” Even though the Healthy Kids program covered Erica Vera’s daughter, she was unable to find another dentist who would accept her insurance. Traveling to a dental appointment was also a problem. Erica and her family live in Sacramento, but her husband drives their one family car to work in San Francisco.

In 2008, the Healthy Kids program lost funding, and Erica enrolled her daughter in a plan through Kaiser Permanente. However, Erica was unable to find a dentist who accepted the insurance. That same year, the Smile Keepers mobile van began visiting her daughter’s school. Funded by First 5 Sacramento, Smile Keepers provides dental exams and flouride varnishes. The atmosphere was much more kid-friendly, and Lizbeth finally had an exam and cleaning. Due to serious decay in one of her molars, the hygienist referred Lizbeth to Smiles for Kids.

Smiles for Kids is a project of the Sacramento Dental District Foundation. Throughout the year, children receive dental screenings, and serious cases are referred to the program for free treatment once a year. Lizbeth was on the waiting list for a year before seeing a participating volunteer dentist. During that time, Lizbeth’s appetite had diminished greatly, and her energy and mood were low. “I felt helpless,” said her mother. “I had her gargle with salt water, hoping it would stop the pain.”

When Lizbeth was finally seen on Smiles for Kids day, one of her molars was pulled due to extensive decay. Lizbeth, now 13, has continued to be “adopted” by dentists in the volunteer program. While Erica appreciates the volunteer dentists, it is not a permanent solution. Lizbeth still does not have a regular dental provider, and Erica never knows if, and when, she will be able to get Lizbeth an appointment. The office visits are often spread all over Sacramento.

“It’s about 40-45 minutes away,” said Erica. “I pay someone to take us, but when they can’t, my husband has to take time off work.”

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Meet the Infante Family

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Joseph, age 1
Humboldt County 

In February 2011, Tina’s 1-year-old son, Joseph, had a bad fall. She rushed him to the hospital thinking the worst. Thankfully, the physician found him to be fine, except for a broken front tooth. However, Tina was unable to find a pediatric dentist who accepted Medi-Cal. What started as a broken tooth, requiring minor treatment, resulted in a year’s worth of pain, health risks, and accumulated costs.

Tina Infante lived in Mendocino, an area that has a shortage of dentists who will care for low-income children on Medi-Cal. Tina did not own a car, and the pediatric dentists were 100 to 150 miles away. To make matters worse, she was unable to find a provider that did not have a long wait list. “They sent me a letter stating it would be three or four months before they could see him,” Tina said. “Later, they said it would be even longer.”

Tina felt helpless, as she noticed her son’s teeth begin to rot. Joseph’s dental caries were spreading. In September, the family moved to Eureka. “One of the reasons we moved to Humboldt County was to find more resources for Joseph,” she said. Still, there was a long wait time before Joseph could be seen. The waiting was agony, as Joseph’s health began to deteriorate. He cried and fussed most of the day, clinging to Tina’s legs. He lost his appetite. 

Then, Tina noticed something strange about his face. “At first, it was slight,” she explained. “Then, his face got really puffy, and we took him to the emergency room (ER).” Joseph had facial edema caused by his oral infection. Facial swelling is serious and can prevent swallowing or close off a person’s airway. Joseph had a high fever and severe infection. He was taken to the ER twice for antibiotic treatments. The second time he was almost admitted to the hospital.  “Over the next couple of weeks, Joseph got better and he was able to receive the dental treatment he needed,” Tina explained.

What started with one broken tooth ended nine months later with two visits to the ER and four extractions by a pediatric dentist. However, most of the trauma, and additional cost associated with it, could have been avoided if Joseph had simply received timely care. 

Unfortunately, the future is a mystery for Joseph’s smile because diseased baby teeth can adversely affect permanent teeth. “Our dentist said that he may have deformed teeth or really crooked teeth,” Tina said. “We won’t know until he’s older and his permanent teeth come in.”

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Meet the Ubias Family

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Juan Carlos, 19 years old
San Luis Obispo County 

Ubias_PhotoMost of Juan Carlos’ childhood involved dental pain and discomfort. “I don’t remember when it started,” said Juan Carlos Ubias. “I think it began when I was 8 or 9 years old.” Juan’s parents are agricultural field workers, and for most of his adolescence, the family could not afford or find proper dental treatment. Today, Juan, 19, is wrapping up his senior year at Mesa View Community School in Oceano, CA. For the first time in a decade, Juan is pain free and happy with his smile.

In 2011, Juan received a dental screening at the school’s annual health fair. Michelle Herber, the school nurse, relayed what the dentist wrote, “Dental attention is needed now. Family dentist should be consulted immediately. Multiple cavities front upper teeth.” Over half of the students at the school required referrals. Juan’s decay was very noticeable on his front teeth. “I used to cover up my smile,” said Juan. “But, most of the time, I’d just let loose and laugh. Sometimes, people looked at my teeth and said that I needed to take care of that.” Juan also had severe dental caries in his back molars and occasionally told his school nurse that he was in pain. “He’s not a complainer,” said Michelle. “He’s quiet, polite, and very respectful. When the pain was bad, he didn’t come to school.” Michelle eventually worked out a treatment schedule with Community Health Centers of the Central Coast. “He’s been twice, and his treatment is still in progress,” she said. “The sad part is that all this could have been so easily avoided if Juan was able to get regular treatment when he was younger.”

For now, Juan feels good about himself, his smile and future. “I’m going to Cuesta College after I graduate,” said Juan. “My dream is to play in the NBA, but for now I’m looking for a job, and I’ll start college in the fall.”

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Submitted Comments on Health Care/Health Reform

  • Group Comments on Proposed Regulations Governing Eligibility and Enrollment for the Individual Exchange
    on April 03, 2013
    Download submitted comments from The Children's Partnership and our consumer advocate partners regarding the Exchange's March 21, 2013 proposed eligibility and enrollment regulations for the Individual Exchange (Covered California). 
  • Comments on Proposed Online and Paper Model Applications
    on February 28, 2013

    Download TCP's submitted comments to CMS on the proposed Online and Paper Model Applications, CMS-10440.

  • Comments on Proposed Rules
    on February 21, 2013
    Download submitted comments from California's Children Advocates to CMS on proposed rulemaking regarding streamlining and seamlessness under the ACA, CMS-2334-P.
  • Comments on Stage 3 Meaningful Use
    on January 14, 2013
    Download TCP's submitted comments to the Office of the National Coordinator for Health Information Technology, HIT Policy Committee, regarding Stage 3 Meaningful Use criteria.
  • Comments on the Single Streamlined Application Data Elements
    on September 04, 2012
    Download TCP's submitted comments on Draft Elements and Supporting Statement for Data Collection to Support Eligibility Determinations, CMS-10433, CMS-10438, CMS-10439 and CMS-10440.
  • Comments, Small Business Health Options Program
    on August 13, 2012

    Download TCP's submitted comments  to the California Health Benefit Exchange on Small Business Health Options Program (SHOP), regarding employee/employer plan choice and navigators.

  • Comments on Service Center Options
    on August 06, 2012
    Download TCP's submitted comments  to the California Health Benefit Exchange on Service Center Options.
  • Comments on Qualified Health Plan Policies and Strategies to Improve Care, Prevention and Affordablility
    on August 06, 2012
    Download TCP's comments on child-only plans , submitted to the California Health Benefit Exchange.
  • Group Comments to CMS, General Guidance on Federally-facilitated Exchanges
    on June 18, 2012
    The Children's Partnership joined national advocates on this letter to CCIIO/CMS  regarding the May 16, 2012 "General Guidance on Federally-facilitated Exchanges".
  • Group Comment on Medicaid Payment Rule
    on June 11, 2012
    Joint advocates letter regarding CMS-2370-P; Medicaid Program: Payments for Services Furnished by Certain Primary Care Physicians and Charges for Vaccine Administration Under the Vaccines for Children Program
  • CHDP Gateway: Maximizing Its Potential for Children as the Affordable Care Act Is Implemented
    on June 07, 2012
    Download our recommendations  to California policymakers regarding increasing access to health care for children through the CHDP Gateway under ACA.
  • Interim Final Rule: Establishment of Exchanges and Qualified Health Plans
    on May 11, 2012
  • Medicaid Program; Eligibility Changes Under the Affordable Care Act of 2010
    on May 07, 2012

    Download submitted comments on CMS-2349-F

  • Meaningful Use Stage 2 Proposed Rules
    on May 07, 2012

    Download the submitted comments  on CMS-0044.

  • Meaningful Use Stage 2 Preliminary Proposed Rules
    on February 25, 2011

    Download the submitted comments  on CMS-0044-P.

  • Proposed Rules, Electronic Health Record (EHR) Incentive Program
    on March 12, 2010

    Download the submitted comments to HIT Policy Committee, CMS-0033-P

Letters of Support on Health Care/Health Reform

  • Letter of Support for SB 126
    on April 01, 2013

    The Children's Partnership supports SB 126 (Steinberg) which will extend the provisions of California’s Autism Insurance Mandate Law (SB 946) for an additional five years until July 1, 2019.

    Download the letter of support here

  • Letter of Support for Healthy Families and Strong Communities
    on March 07, 2013

    The Children's Partnership joins over 360 organizations on a signed a letter to the President and Members of Congress in support of access to health care and nutrition assistance for all Americans, including immigrant families.

    Download the letter here.

  • Letter to HHS: Eliminate CHIP Waiting Period
    on February 21, 2013

    The Children's Partnership signed-on with other child advocates to support the elimination of a waiting period currently under the Proposed Rule pertaining to Medicaid, Children's Health Insurance Programs, and Exchanges, CMS-2234-P. 

    Download the full letter here.

  • Joint Letter on the Proposed Regulations for Medicaid to Age 26 for Eligible Former Foster Youth
    on February 20, 2013

    The Children's Partnership joined the Children's Defense Fund and other child advocacy organizations on a letter to HHS on a new health care law requirement that former foster care youth be covered by Medicaid to the age of 26. 

    Download the letter here

  • Letter to Democratic Congressional Leadership: Protect Medicaid
    on December 19, 2012

    The Children's Partnership signed-on with Community Catalyst as one of 193 groups from thirty-four states and Washington, DC urging the Democratic Congressional Leadership to protect Medicaid in the current budget debate to avert the fiscal cliff. 

    Download the full letter here.

  • Letter of Support for School-Based Health Centers
    on December 05, 2012

    The Children's Partnership joined the California School Health Centers Association, the National Assembly on School-Based Health Care, and other children’s advocates in support for a $50 million appropriation, in the President’s FY 2014 budget, dedicated exclusively to school-based health center (SBHC) operations.

    Download the letter to Secretary Sebelius here

  • California's Section 1115 Waiver Amendment Request Regarding the Children's Health Insurance Program Transition into Medicaid
    on November 09, 2012

    The Children's Partnership signed-on with NHeLP and other California child advocate organizations to voice comments and concerns about California's Section 1115 Waiver Amendment Request regarding the Children's Health Insurance Program Transition to Medicaid Program. 

    Download the letter here

  • Coverage for DACA Eligible Teenagers and Young Adults
    on October 29, 2012

    The Children's Partnership joined national and state children's advocates supporting Deferred Action for Childhood Arrivals or DACA-eligible individuals having access coverage in the Pre-existing Condition Insurance Plan (PCIP) as well as through the Exchanges. 

    Download the support letter sent on October 29, 2012.

  • Support Letter Urges Governor to Sign SB 970 (de Leon)
    on September 08, 2012

    The Children's Partnership submitted a letter to Governor Brown, urging his signature of SB 970 (de Leon).  SB 970 would integrate the process of applying for health coverage with public programs such as CalFresh and CalWORKS. 

  • Coalition Letter to Governor Brown and CA Legislature on Healthy Families Elimination
    on June 25, 2012
    The Children's Partnership joins a broad coalition in a statement urging the Legislature to vote "no" on Health Families elimination.
  • Support Letter to Protect CHIPRA Performance Bonus Funding
    on May 07, 2012

    The Children's Partnership joined a broad coalition of national advocates opposing a vote by the House Energy and Commerce Committee to cut $400 million from CHIPRA Performance Bonuses funding.  

    Download the letter  sent to all House health staff May 7, 2012

  • Coalition Letter in Support of the Children's Budget Act
    on April 16, 2012

    The Children's Partnership joined this letter of support by the First Focus Campaign for Children on their work with Representative Danny Davis (IL) in the House and Senator Menendez (NJ) in the Senate on the Children’s Budget Act – H.R. 1602 and S. 1396.  The legislation would call for the Office of Management and Budget (OMB) to annually produce a full and deliberate accounting of all the money the federal government spends on and for children.

    Download the letter  sent on April 16, 2012.

  • California's Children's Health Coverage Coalition Sends Letter to CA Legislature Regarding Healthy Families to MediCal Shift
    on June 02, 2011
    Download letter to Senator Steinberg and Assemblymember Perez.
  • California's Children's Health Coverage Coalition Sends Letter to CA Legislature
    on May 23, 2011
    Download the letter to Senator DeSaulnier and Assemblymember Mitchell.

Presentations on Health Care/Health Reform

  • Children’s Regional Integrated Service System Conference: ACA Impacts for Children
    on November 02, 2012

    Kristen Golden Testa presented implications and benefits of ACA for California’s children with special needs.

    Download the Power Point presentation here.

     

  • California's Experience Designing a Streamlined User-Friendly Enrollment System
    on January 19, 2012

    Kristen Golden Testa, Health Director
    Health Action 2012 Families USA, Washington DC
    January 19, 2012

    Download the Power Point