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Research - Community Projects - Advocacy

HIT

Expanding the Use of a Personal Health Record (PHR) System to California’s Foster Care Population

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Ginny Puddefoot, , Director of HIT Initiatives for Vulnerable Youth 

California Child Welfare Council
Data Linkage and Information Sharing Committee
San Francisco, CA

Download the presentation here. (pdf)

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Comments on Stage 3 Meaningful Use

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Download TCP's submitted comments to the Office of the National Coordinator for Health Information Technology, HIT Policy Committee, regarding Stage 3 Meaningful Use criteria.
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Improving Outcomes for Children in Foster Care: The Role of Electronic Information Exchange

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Ginny Puddefoot presented with Barry Zimmerman, Director of Ventura County Human Services Agency, to the California Child Welfare Council’s Information Sharing and Data Exchange Committee; highlighting TCP’s work on HIT and Care Coordination and the proposed Ventura County Foster Health Link Project.

Download the Power Point Presentation here

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Congressional Briefing: Electronic Information Exchange for Children in Foster Care

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Beth Morrow, Director, Health IT Initiatives
Children's Health Care Caucus, Washington, DC
May 17, 2012

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Building A Consumer-Driven Eligibility, Enrollment, and Renewal System: Essential Design Features for Effective Health Reform in California

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 By Dawn Horner and Beth Morrow | January 2012

roadmap_thumbnailThis roadmap lays out the four design features (and practical recommendations for action within each) necessary to enroll almost 4 million Californians newly eligible for subsidized health coverage under health reform, in addition to assisting the over 8 million already receiving such coverage. While written with a specific focus on California, the information and recommendations in the report will be relevant to decisionmakers in any state.

Download the Executive Summary
Download the Full Report 

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Maximizing the Value of HIT to Improve the Health of Children: A Guide for Consumer Engagement

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By Beth Morrow | September 2011

consumer_engagement_thumbThe Children's Partnership has developed a guide to maximize HIT's ability to engage child and parent consumers in their own health by improving access to and use of their electronic health information. When designed with children and parents in mind, HIT can connect, inform, empower, and protect -- four guide posts to effective engagement of this critical consumer segment.

Download the report.

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New Resources on Consumer Engagement Through Health IT

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Health Reform Enrollment September 2011 Update 

Maximizing the Value of HIT to Improve the Health of Children: A Guide for Consumer Engagement. 

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Explaining Health Reform: Uses of Express Lane Strategies to Promote Participation in Coverage

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By Beth Morrow | July 2011

Kaiser_Brief_EL_Strategies_thumb

Under the Patient Protection and Affordable Care Act (ACA), millions of uninsured adults and children will gain eligibility for Medicaid or health coverage through new health insurance Exchanges beginning in 2014. The law calls upon states to develop simple and streamlined processes for establishing, verifying and updating eligibility for Medicaid, the Children's Health Insurance Program and federal subsidies for Exchange coverage.

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From Silos To Linkages: Improving Outcomes For Vulnerable Youth Through the Wise Use of Information Technology

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By Stefanie Gluckman with Ashley Phelps | May 2011

silos_thumbCalifornia is poised to make great progress, and has an opportunity to leverage the tremendous potential of information technology to improve health and wellness outcomes for vulnerable populations, particularly children and youth living in foster care.  Recent technology and policy developments have created an environment in which it is possible to transform the delivery of care by linking systems, programs, and providers, allowing decision-makers efficient access to the information necessary to provide comprehensive care to the whole child.Building on two previous reports, this Issue Brief summarizes the potential for electronic information exchange to enhance care coordination and improve outcomes, highlights current efforts at the state and local level to achieve these results, and raises a few policy issues that, if resolved, would facilitate movement toward the goal of appropriate information exchange between programs and providers to serve vulnerable youth.

Download this Issue Brief.

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Express Lane Moves Forward in the States

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Health Reform Enrollment  April 2011 Update (pdf)

Also, Resources to Help States Move Forward with Health Reform Enrollment Systems Planning

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Mobile Technology: Smart Tools to Increase Participation in Health Coverage

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By Lisa Han and Beth Morrow | March 2011

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Electronic Information Exchange for Children in Foster Care: A Roadmap to Improved Outcomes

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By Stefanie Gluckman with Ashley Phelps | February 2010

 

FosterCareRoadMapCoverThe need for efficient and effective coordination of care to adequately serve children living in foster care is broadly acknowledged by experts in the field. This Roadmap describes how information technology and the electronic exchange of information can be used as a powerful tool to improve the coordination of care and provision of services for children living in foster care in California.

After presenting alternative models for an electronic system that facilitates information sharing between providers in the foster care system, and considering the technical, financial, and political opportunities that exist for moving this effort forward, this Roadmap recommends concrete steps that the State and other key stakeholders can take toward improving outcomes for children in foster care through the use of information technology.

Download the Full Roadmap  (PDF, 1.2 MB).

Download the Executive Summary  (PDF, 184 KB).

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TCP Mentioned in Several Media Outlets Highlighting Technology-Enabled Innovations for Improving Children's Health

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Technology-Enabled Innovations for Improving Children's Health, a joint project of The Children's Partnership and the Public Health Institute/Health Technology, has been highlighted in several media outlets. 

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How Technology Can Help an ELE Effort

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By The Children's Partnership | August 2008

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Improving Health Outcomes for Children in Foster Care: The Role of Electronic Record Systems

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Working Draft by Stefanie Gluckman with Terri Shaw | October 2008

fostercare11This Issue Brief describes how Electronic Record Systems (ERS) - electronic health records, personal health records, and similar technology solutions that facilitate the management, sharing, and use of information - can benefit children in foster care, and the systems that serve them. The brief profiles state and local ERS efforts for the foster care population, highlighting early evidence of the efforts' impact and outlining lessons- learned. It also provides recommendations for actions to expand the reach of ERSs to benefit greater numbers of children in foster care and, potentially, other children and families.

Download the Issue Brief (PDF, 516 KB)

Download the Exectuve Summary (PDF, 216 KB)

Download a One-Page Overview of How Technology is Being Used to Improve the Lives of California's Foster Care Youth (PDF, 92 KB)

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Report: I.T. Can Boost Child Coverage

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Health Data Management

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Submitted Comments on Health Care/Health Reform

  • Group Comments on Proposed Regulations Governing Eligibility and Enrollment for the Individual Exchange
    on April 03, 2013
    Download submitted comments from The Children's Partnership and our consumer advocate partners regarding the Exchange's March 21, 2013 proposed eligibility and enrollment regulations for the Individual Exchange (Covered California). 
  • Comments on Proposed Online and Paper Model Applications
    on February 28, 2013

    Download TCP's submitted comments to CMS on the proposed Online and Paper Model Applications, CMS-10440.

  • Comments on Proposed Rules
    on February 21, 2013
    Download submitted comments from California's Children Advocates to CMS on proposed rulemaking regarding streamlining and seamlessness under the ACA, CMS-2334-P.
  • Comments on Stage 3 Meaningful Use
    on January 14, 2013
    Download TCP's submitted comments to the Office of the National Coordinator for Health Information Technology, HIT Policy Committee, regarding Stage 3 Meaningful Use criteria.
  • Comments on the Single Streamlined Application Data Elements
    on September 04, 2012
    Download TCP's submitted comments on Draft Elements and Supporting Statement for Data Collection to Support Eligibility Determinations, CMS-10433, CMS-10438, CMS-10439 and CMS-10440.
  • Comments, Small Business Health Options Program
    on August 13, 2012

    Download TCP's submitted comments  to the California Health Benefit Exchange on Small Business Health Options Program (SHOP), regarding employee/employer plan choice and navigators.

  • Comments on Service Center Options
    on August 06, 2012
    Download TCP's submitted comments  to the California Health Benefit Exchange on Service Center Options.
  • Comments on Qualified Health Plan Policies and Strategies to Improve Care, Prevention and Affordablility
    on August 06, 2012
    Download TCP's comments on child-only plans , submitted to the California Health Benefit Exchange.
  • Group Comments to CMS, General Guidance on Federally-facilitated Exchanges
    on June 18, 2012
    The Children's Partnership joined national advocates on this letter to CCIIO/CMS  regarding the May 16, 2012 "General Guidance on Federally-facilitated Exchanges".
  • Group Comment on Medicaid Payment Rule
    on June 11, 2012
    Joint advocates letter regarding CMS-2370-P; Medicaid Program: Payments for Services Furnished by Certain Primary Care Physicians and Charges for Vaccine Administration Under the Vaccines for Children Program
  • CHDP Gateway: Maximizing Its Potential for Children as the Affordable Care Act Is Implemented
    on June 07, 2012
    Download our recommendations  to California policymakers regarding increasing access to health care for children through the CHDP Gateway under ACA.
  • Interim Final Rule: Establishment of Exchanges and Qualified Health Plans
    on May 11, 2012
  • Medicaid Program; Eligibility Changes Under the Affordable Care Act of 2010
    on May 07, 2012

    Download submitted comments on CMS-2349-F

  • Meaningful Use Stage 2 Proposed Rules
    on May 07, 2012

    Download the submitted comments  on CMS-0044.

  • Meaningful Use Stage 2 Preliminary Proposed Rules
    on February 25, 2011

    Download the submitted comments  on CMS-0044-P.

  • Proposed Rules, Electronic Health Record (EHR) Incentive Program
    on March 12, 2010

    Download the submitted comments to HIT Policy Committee, CMS-0033-P

Letters of Support on Health Care/Health Reform

  • Letter of Support for SB 126
    on April 01, 2013

    The Children's Partnership supports SB 126 (Steinberg) which will extend the provisions of California’s Autism Insurance Mandate Law (SB 946) for an additional five years until July 1, 2019.

    Download the letter of support here

  • Letter of Support for Healthy Families and Strong Communities
    on March 07, 2013

    The Children's Partnership joins over 360 organizations on a signed a letter to the President and Members of Congress in support of access to health care and nutrition assistance for all Americans, including immigrant families.

    Download the letter here.

  • Letter to HHS: Eliminate CHIP Waiting Period
    on February 21, 2013

    The Children's Partnership signed-on with other child advocates to support the elimination of a waiting period currently under the Proposed Rule pertaining to Medicaid, Children's Health Insurance Programs, and Exchanges, CMS-2234-P. 

    Download the full letter here.

  • Joint Letter on the Proposed Regulations for Medicaid to Age 26 for Eligible Former Foster Youth
    on February 20, 2013

    The Children's Partnership joined the Children's Defense Fund and other child advocacy organizations on a letter to HHS on a new health care law requirement that former foster care youth be covered by Medicaid to the age of 26. 

    Download the letter here

  • Letter to Democratic Congressional Leadership: Protect Medicaid
    on December 19, 2012

    The Children's Partnership signed-on with Community Catalyst as one of 193 groups from thirty-four states and Washington, DC urging the Democratic Congressional Leadership to protect Medicaid in the current budget debate to avert the fiscal cliff. 

    Download the full letter here.

  • Letter of Support for School-Based Health Centers
    on December 05, 2012

    The Children's Partnership joined the California School Health Centers Association, the National Assembly on School-Based Health Care, and other children’s advocates in support for a $50 million appropriation, in the President’s FY 2014 budget, dedicated exclusively to school-based health center (SBHC) operations.

    Download the letter to Secretary Sebelius here

  • California's Section 1115 Waiver Amendment Request Regarding the Children's Health Insurance Program Transition into Medicaid
    on November 09, 2012

    The Children's Partnership signed-on with NHeLP and other California child advocate organizations to voice comments and concerns about California's Section 1115 Waiver Amendment Request regarding the Children's Health Insurance Program Transition to Medicaid Program. 

    Download the letter here

  • Coverage for DACA Eligible Teenagers and Young Adults
    on October 29, 2012

    The Children's Partnership joined national and state children's advocates supporting Deferred Action for Childhood Arrivals or DACA-eligible individuals having access coverage in the Pre-existing Condition Insurance Plan (PCIP) as well as through the Exchanges. 

    Download the support letter sent on October 29, 2012.

  • Support Letter Urges Governor to Sign SB 970 (de Leon)
    on September 08, 2012

    The Children's Partnership submitted a letter to Governor Brown, urging his signature of SB 970 (de Leon).  SB 970 would integrate the process of applying for health coverage with public programs such as CalFresh and CalWORKS. 

  • Coalition Letter to Governor Brown and CA Legislature on Healthy Families Elimination
    on June 25, 2012
    The Children's Partnership joins a broad coalition in a statement urging the Legislature to vote "no" on Health Families elimination.
  • Support Letter to Protect CHIPRA Performance Bonus Funding
    on May 07, 2012

    The Children's Partnership joined a broad coalition of national advocates opposing a vote by the House Energy and Commerce Committee to cut $400 million from CHIPRA Performance Bonuses funding.  

    Download the letter  sent to all House health staff May 7, 2012

  • Coalition Letter in Support of the Children's Budget Act
    on April 16, 2012

    The Children's Partnership joined this letter of support by the First Focus Campaign for Children on their work with Representative Danny Davis (IL) in the House and Senator Menendez (NJ) in the Senate on the Children’s Budget Act – H.R. 1602 and S. 1396.  The legislation would call for the Office of Management and Budget (OMB) to annually produce a full and deliberate accounting of all the money the federal government spends on and for children.

    Download the letter  sent on April 16, 2012.

  • California's Children's Health Coverage Coalition Sends Letter to CA Legislature Regarding Healthy Families to MediCal Shift
    on June 02, 2011
    Download letter to Senator Steinberg and Assemblymember Perez.
  • California's Children's Health Coverage Coalition Sends Letter to CA Legislature
    on May 23, 2011
    Download the letter to Senator DeSaulnier and Assemblymember Mitchell.

Presentations on Health Care/Health Reform

  • Children’s Regional Integrated Service System Conference: ACA Impacts for Children
    on November 02, 2012

    Kristen Golden Testa presented implications and benefits of ACA for California’s children with special needs.

    Download the Power Point presentation here.

     

  • California's Experience Designing a Streamlined User-Friendly Enrollment System
    on January 19, 2012

    Kristen Golden Testa, Health Director
    Health Action 2012 Families USA, Washington DC
    January 19, 2012

    Download the Power Point